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ARVC Is there anyone out there cycling with this condition ?

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  • January 30, 2017 at 5:45 pm #26730
    Batchy

    To cut a long story short. After having had two serious attacks of VT (Ventricular tachycardia) and having to be cardioverted each time. I have now been informed that I have a genetic heart condition called Arrhythmogenic Right Ventricular Cardiomyopathy  – ARVC. This condition can lead to sudden death especially whilst undertaking vigorous exercise. I am due to be fitted with an IDC pacemaker. This is an upgrade from my current device that controls/paces my heart block. Are there any cyclists out there that have ARVC and have an ICD implanted. If so how has this affected their Cycling and way of life. I am 67years old and up until last December was riding on average 150 miles per week at average 15 mph. 

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  • February 1, 2017 at 11:07 am #886073
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    arfa

    Sorry to hear of your woes
    Sorry to hear of your woes but presumably your cardiologist has advice on a max heart rate for you to stay under ? If so, how about a heart rate monitor/gps with an alarm just below the level ?
    On long rides I focus on staying out of my “red zone” and monitor heart rate closely as a result. I don’t know if this might be an option?

    February 1, 2017 at 10:17 am #886071
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    Batchy
    Jeffmcguinness wrote:
    Sorry – I can’t help you but I do wish you all the best in looking for the right advice.  If you’re ever in Northern Ireland I’ll take you for a very easy cycle and a great coffee stop if that’s allowed?  

     

    Thanks Jeff ! Once I get my head round the situation I’ll be fine. An E bike may be the solution and I have been thinking in this direction. I was rather hoping that there may be someone out there that had first hand experience so that I could compare notes. Due to the severity of this condition it is likely that that brisk walking may well be the most or least dangerous exercise that I can undertake. Coincidentally the BBC News today is highlighting this heart condition and anyone who participates in vigorous exercise should take heed !

     

    February 1, 2017 at 9:28 am #886069
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    Jeffmcguinness

    Sorry – I can’t help you but

    Sorry – I can’t help you but I do wish you all the best in looking for the right advice.  If you’re ever in Northern Ireland I’ll take you for a very easy cycle and a great coffee stop if that’s allowed?  

     

    February 1, 2017 at 9:27 am #886067
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    Mungecrundle

    Controversially these days
    Controversially these days you actually need to listen to your cardiologist expert and take their advice. But if the gist is keep moving but don’t over exert yourself then why not look at assisted bikes? There is at least one turns up occasionally at our club ride and made welcome.

    February 1, 2017 at 9:19 am #886065
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    Batchy

    Well Batchy it looks like you

    Well Batchy it looks like you’re flogging a dead horse here Batchy. Or should that be cyclist !?

    I suppose that this was always going to be the answer. I will more than likely have a couple of half decent bikes and a shed load of tools for sale in the near future ! But I’m sure going to miss the breeze in my face and sun on my back and the crack with my mates in the peloton !

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