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Pernicious Anaemia VitB12 Deficiency ??

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  • May 3, 2015 at 5:44 pm #23912
    Mostyn

    Hi All,
    Does anyone suffer with Pernicious Anaemia VitB12 Deficiency ? I’ve been diagnosed with this; and need to go on VitB12 injections for the rest of my life. My cycling has taken a nose-dive in the last 12, month or so; some days I can hardly walk and my energy levels are at rock bottom. I’ll probably begin the B12 injections sometime this coming week. Anyone experience this debilitating illness ?? I long to get out on the bike and get some kind of fitness again.

    If you have PA, I’d like to hear how you manage it..

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  • May 5, 2015 at 6:00 pm #844545
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    Mostyn

    crikey wrote:’I think I’ve

    crikey wrote:
    ’I think I’ve got a serious disease and I’m going to buy some medicine from Amazon to cure it…’

    Have a word with yourself.

    Ha ha, your a funny guy! But seriously; it makes good sense at present.

    May 5, 2015 at 5:47 pm #844543
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    crikey

    ‘I think I’ve got a serious
    ‘I think I’ve got a serious disease and I’m going to buy some medicine from Amazon to cure it…’

    Have a word with yourself.

    May 5, 2015 at 5:07 pm #844541
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    Mostyn

    Thanks for the replies
    Thanks for the replies ,,

    I’ve just ordered some Methylcobalamin Sublingual Tabs from Amazon 5000mcg 60, tabs £14.30 Cherry flavour.

    Hope they help..

    May 5, 2015 at 4:44 pm #844539
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    Mother Theresa

    Standard Treatment is 6 jabs
    Standard Treatment is 6 jabs of B12 over two weeks then three monthly jabs for life (I have given two today coincidentally). You can’t absorb B12 from the stomach due to an autoimmune problem so that is why you can’t have pills and have to have the jabs. Usually once B12 replete you should feel 100% again.

    B12 lack causes a myriad of Symptoms as B12 is needed where ever vitamin C is needed – which is wherever collagen is needed which is everywhere really.

    I hope this helps.

    May 5, 2015 at 3:50 pm #844537
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    K Stand Ken

    I also suffer from Pernicious
    I also suffer from Pernicious Anaemia which was only diagnosed a couple of years ago, but looking back I can see the initial “bone-wearying tiredness” developing some years before then. I’m 69 now and no longer have the energy to ride my bike – I was even considering buying an electric assisted bike.
    I have B12 injections every 9 weeks, after asking for a reduction in the original 12 week cycle, but I don’t seem to feel any benefit even shortly after the injection. I am also diabetic and fortunate to be under the regular care of a very good nurse at my GP surgery for both complaints. I have complete faith in her and the doctors. I was informed I would be wasting my money on vitamin supplements, but if it works for you, who can say it isn’t cost effective.
    Unlike the first person who replied, I don’t suffer from depression but I now have a severe lack of motivation, and not just for physical tasks – I need to think about it for a long time (then ignore it for a while) before I initiate any household refurbishment projects, for instance, new double glazing, building work and interior decorating are all overdue.
    Other than the simplest tasks, any home DIY is now out of the question, which is disappointing as I used to be a very keen DIYer. I also took pride in trimming the 30 foot long front hedge, but now I have a gardener to do this.
    Sorry for my tale of doom and gloom – I do hope you find some relief.

    May 5, 2015 at 2:48 pm #844535
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    Mostyn

    Thanks guys,
    this B12D is
    Thanks guys,

    this B12D is certainly a complicated illness; diagnosis is at best a hit and miss type of lottery; depending on your GP’s interpretation of blood test results. I’m going back to the Doctor for further consultation about the blood tests.

    May 5, 2015 at 2:42 pm #844533
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    bikeclips

    Hi Mostyn, I know a bit about
    Hi Mostyn, I know a bit about this subject. Iron deficiency is a common partner to B12 deficiency in pernicious anaemia. Even so, at your age (sorry), you need to have your gut looked at – (a camera in both ends…) – if you have proven iron deficiency. Better to have a gastroscopy (top end) anyway as this allows a look at the stomach lining which is affected in pernicious anaemia (and which is also responsible for the iron deficiency) and you can be tested for coeliac disease this way as well (unlikely). I’m not sure whether your B12 level is actually low but you need a bit of a sort out anyway! Though the rheumatologist can sort all that out, I guess your GP could coordinate things a bit faster?

    May 5, 2015 at 1:38 pm #844531
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    AJ101

    GP didn’t do it for me, went
    GP didn’t do it for me, went to a naturapath type doctor who was highly recommended and it turned out I had various underlying issues – candida imbalance & leaky gut, as well as a bad diet. Clumped platelets as well (you mentioned sticky blood up there), making it hard for them to get accurate platelet counts.

    May 5, 2015 at 1:10 pm #844529
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    Docroddy

    B12 AND iron deficiency may
    B12 AND iron deficiency may indicate malabsorption. Get tested for coeliac disease. And you need to start B12 injections.

    May 5, 2015 at 12:08 pm #844527
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    Mostyn

    Thanks for the reply TG,
    I’m
    Thanks for the reply TG,

    I’m 67, I no longer take part in competitive cycling or triathlons. I do so still love the bikes and my cycling (only for pleasure these day’s) although I was tempted two years ago to do a 25, TT. I knew after that there was no getting back to bike racing.

    My blood tests indicate I am severely Vit B12 Deficient – need to see another GP?

    May 5, 2015 at 11:43 am #844525
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    The goat

    I have not been diagnosed
    I have not been diagnosed with pernicious anaemia. However last year, about a month after a couple of hours of surgery I was not making a recovery and was exhausted and pretty depressed. The lead into this was pretty stressful which did not help, I’m also over 60 and was begining to think this was my lot. I then read that this these symptoms and B12 deficiency can be common after surgery (the medical profession dispute this). As I was pretty desperate I tried a liquid B12 supplement, I normally avoid supplements. In a week or so things did improve – more energy and all I can say is that I started to have a more positive mental attitude. Now I know B12 is not easily absorbed through the gut and the whole thing maybe placebo effect, but it worked for me. My times are coming down and a new bike is in the offing. I do not take the stuff regularly – I eat well and that should be enough if you are healthy. It might be worth a try before they try to ‘fix you’. I hope things work out well.

    May 5, 2015 at 11:40 am #844523
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    Mostyn

    Thanks for the replies,
    My
    Thanks for the replies,
    My B12 is 136. But I have a problem with seeing the same doctor at my surgery! I’ve seen four different doctors about this problem. Was told I’d need to go on injections for B12D by one GP only last week; He asked me to have (yet) another blood test. This morning I attended the surgery and was seen by another GP; and would you believe it, He was the one GP (Doctor) I didn’t wan’t to see! He seems to think that VitB12 of 136 in the blood is low But not that low; and although I have all the symptoms of Pernicious anaemia, he refused to start me on any kind of medication. He has referred me to the Rheumatology Dept at the Hospital. I was diagnosed with Arthritis many years ago. The latest blood test shows no alteration in the B12. of 136. but he mentioned something in the blood test about Plasma, also said I have sticky blood, no idea what that’s about? I’m also Iron deficient and the normal blood count is on 10, which is also low.

    It looks like I’m going to suffer a bit longer with this illness before getting any treatment for B12 Deficiency; even though two GP’s and the Nurse seem to think that a B12 count as low as 136, requires medical attention.

    I’m annoyed with my GP Surgery .. I’ve not bothered them for the past 5/6 years! I dislike going to the surgery that much, I normally try to overcome any illness without troubling them; but now with this illness, I need some help. I really do feel ill; and there’s no improvement as time passes.

    May 5, 2015 at 8:14 am #844521
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    AJ101

    Suffered B12 deficiency in
    Suffered B12 deficiency in the past and it isn’t fun thats for sure. Injections got me feeling closer to normal again, then supplements – floradix and oral b12, and diet modification – vegetarian with minimal attention paid to protein / b12 consumption previously.

    Hope yours is as straightforward to fix.

    May 5, 2015 at 7:42 am #844519
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    Bob's Bikes

    Just been told by the quack
    Just been told by the quack that I have a low B12 count (180 when scale is 120 to 700) so I may have this as I have had same symptons as yourself. Although not for the same length of time as you, I have only been ill and off work, the bike, etc etc for four weeks now.
    This vitamin deficiency is also age related as both my parents have to have injections every two-three months.
    Also one of the effects of low B12 is depression which does not help when you’re already feeling like death warmed up, I am hoping that with the injections my levels will be restored and everything will be better and for you as well.

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